Beth had a GREAT idea, she walked Maryam through the whole process and exaggerated everything. She totally kept Maryam's attention the whole time too! She took a bite and then exaggerated the chewing and then when it came time to swallowing Beth had Maryam touch her throat and exaggerated a giant loud gulp so that Maryam could see, hear and feel Beth swallow. Brilliant! Maryam actually responded!
Last night Maryam was doing her usual pick off of Mommy and Daddy's dinner and completely ignore her own when I know for sure that she swallowed a piece of Mommy's taco! And then after dinner she requested the usual "Chatos". We saw her SWALLOW at least 7 maybe even 10! How amazing is that? Hooray!
My friend Christi asked, what is the Dietitian at CHOC going to say about the "Chatos"? And I have NO idea! BUT I'm not going to stop having Maryam eat ANYTHING until I'm instructed to do so.
Speaking of CHOC, I got some more information from our wonderful case worker yesterday. I got a link to some information on their website http://www.choc.org/feedingprogram/index.cfm The program sounds amazing. Brett and I cannot wait to see if this will do the trick for Maryam. She has come a long way with OT from not wanting to put anything into her mouth to now needing to learn to swallow. I'm very grateful to Maryam's therapists! But her therapists agree that its time for a more intensive treatment. I found an amazing story on the CHOC website about a boy named Ryen, you all should read it if you get the chance. I pray that Maryam will have as much success from the team at CHOC as this little boy did.
pfft. . in my opinion, if the girl wants to actually eat and swallow 'Chatos', then let the girl eat 'Chatos'!
ReplyDeleteThe overexaggerated 'eating' sounds like it really hit home with M. . .like "OH! So THAT is where you put all that food you eat every day!" Bring on the CHATOS mama! Go Maryam!
((HUGS)) Ellen & Ally