Yesterday was our first full day at CHOC. And oh boy, were we busy!
7:00 wake-up
7:30 breakfast tray delivered
7:45 check out of the floor with the floor clerk then head down to therapy in the basement.
8:00 feeding therapy started
9:00 random mini-unofficial team meeting in the elevator up to our floor
9:45 snack delivered
10:00 snack in our room
10:30 Child Life Play Room (M's child life coordinator Peggy watched her for a bit while Mommy took a shower and ate lunch!
11:30 lunch tray delivered
11:45 check out of the floor with the floor clerk then head down to feeding therapy in the basement
noon feeding therapy started
1:00 Dr. Katz poked in to tell us that he put a hold on the med that the mini-unofficial team meeting decided was the reason for M's hair pulling
1:15 Jill and Jessica the nutritionists come in and ask us questions and give us information
1:20 M takes a nap
2:00 Lee the social worker came in to check up on us
2:40 woke up Maryam for her 3:00 feeding therapy snack
2:45 check out of the floor to go to feeding therapy in the basement
3:00 feeding therapy
4:00-6:00 FREE TIME which is code for "good luck keeping your kid occupied for the rest of the night!"
4:15 bundle up Maryam because she was freezing. She asked for socks and a coat!
4:30 customer service comes by to make sure we're comfortable. I asked them to lean on maintenance about our temperature. They agreed that our room is freezing.
5:00 Maryam decided she wanted to go to a park. When I told her there were none in walking distance, she replied "Oh, Ok, I know! Disneyland!" Although I applaud her efforts and agreed that Disneyland would be a great place to go, we compromised on a walk around the floor. Our walk lasted until 6pm!
6:00 dinner in our room
7:00 Mommy sits down to eat her dinner when Maryam decided to take a header off of the bed and bruise her temple and cut her face. GOOD TIMES.
7:03-7:25 steady stream of nurses and doctors checking Maryam's head and eyes
7:30 maintenace finally arrived to fix our temperature! HOORAY!
7:35 volunteers came around to make crafts. Maryam made a party had then decided she wanted to go to a "pizzy party." I have no idea where she got that idea from.
7:45 bathtime! Woohoo!
8:30 tried to get Maryam to sleep.
9:15 Maryam fell asleep
9:30 Mommy started the feeding pump
9:35 Mommy fell asleep without dinner
wow .. I'm tired just reading about it. It seems like M is keeping her toddler sense of humor :) Bring on the puree'd pizza! uh. . . eewww LOL! Thinking about you guys a lot! I hope you stay awake long enough to eat tonight! Gotta feed that little bean! :) ((HUGS)) from Ohio
ReplyDelete-Ellen & Ally
Love reading the updates - helps us all "be there with you" since we are thinking about you guys all the time anyway :) How cute - I'm with M - Disneyland for sure after the 3 weeks!
ReplyDeleteLady! My thoughts and prayers are with you and M. Please take care of you along with M. Eat! Thanks for the updates, I know it's time consuming doing them for us all.
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