Wednesday, April 8, 2009
Once I got to the Member Services Office I felt much better because the nice lady there explained that under a conversion plan Maryam wouldn't need to be medically qualified! Hooray! Because NO ONE would insure Maryam if they had a choice, she costs a fortune to maintain! Well, the new conversion plan costs even more than our old plan and the benefits are very inferior. Maryam's CHOC stay went from being covered 100% to us having to pay $200/day! So, for 19 days we're going to be paying $3800. BUT, if it cost a million dollars, I'm sure we'd find a way to make it happen. This opportunity means the world to our family. The dream of having Maryam eat is within our reach, I'm not going to let ANYTHING get in the way of making this happen.
Our next meeting with the CHOC team is April 21st. The three of us have to meet with the GI Doctor again and also the team psychologist. From what I understand, the psychologist is going to go over the plan and make sure that we can handle it. I imagine it has to be difficult to watch your child be deprived of a bolus feeding knowing that she's starving. Especially now that Maryam actually asks for her bottle and tube.....yep! Hopefully everything goes well at that appointment and we'll be checking into the clinic on May 4th! That's less than 4 weeks away! HOORAY!
On April 4th Maryam decided to celebrate the one month count down by letting Mommy spoon feed her an entire bowl of Cool Whip! It was the most exciting thing ever! She actually let me spoon feed her without turning her head or pushing my hand away! Most of you mommies get to do that when your child is 6 months old, I had to wait until she was 2 years and 4 months! The even better news is that she's let me do it everyday since then! Hooray for progress!