Tuesday, October 27, 2009

Maryam's follow up with CHOC

Maryam's appointment with the feeding team went well. I didn't like that I couldn't go, but hey that's life.
They were glad that Maryam has transitioned away from purees so quickly. They like that she is taking less time to eat and that she's requesting foods. The dietitian wants us to sneak vegies into Maryam's diet. She recommended a book and we bought it. The nurse practitioner wants Maryam to gain more weight. So, for now we'll continue giving her a bolus at night and keep trying to put more weight on her.
She came home very excited about spending time at CHOC. She gave everyone hugs and sat in one of her therapist's lap during the meeting. I love how much she loves them. The team has been amazing. She loves them, we love them and they have forever changed our lives.
Sent from my Verizon Wireless BlackBerry

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